People in the Parkinson's community


Parkinson's is classified as a movement disorder but  is now recognised as a complex condition with many non-motor symptoms as well. Common motor symptoms include:  

·        Tremor

·        Rigidity (stiffness of the muscles)

·        Akinesia (abnormal movement)

In addition, because of postural instability, poor balance can be a feature. These symptoms are also associated with disturbance of gait (the manner of walking), particularly as Parkinson's progresses. The symptoms may occur alone or in combination. They usually start on one side of the body and after a period of years will then involve the other side of the body.

(Information sheet - Description, Incidence and Theories of Causation)
(Information sheet - Nutrition and Parkinson's)
(Information sheet - Diagnosis of Parkinson's)

The tremor that occurs in Parkinson's characteristically happens when that part of the body is relaxed. It is therefore called a resting tremor. A percentage of people also suffer from an action tremor, that is, the tremor occurs when the person attempts to do something. The tremor seen in Parkinson's is usually worse when the patient is at rest. It improves during voluntary movement and disappears during deep sleep. The tremor may be made worse by anxiety or stress, particularly when in a public place. Where a person diagnosed with Parkinson's only has a tremor, it is very important to ensure the diagnosis is correct. There are other conditions that produce a tremor, particularly familial or essential tremor. These can look very similar to Parkinson's but may require different treatment. 
(Information sheet - Parkinson's Symptoms)

The stiffness or rigidity of the muscles is a less visible symptom than the tremor. However, it is often more bothersome to the patient. The stiffness may also be accompanied in some degree to the limb affected by an aching type of pain, which is not relieved by analgesics such as aspirin, but which improves when the person is placed on medication for their Parkinson's.
(Information sheet - Pain and Parkinson's)

Akinesia (Abnormal movement)
Probably the most disabling symptom of Parkinson's is a general lack or slowness of voluntary movements. This is called akinesia and is often seen in association with the rigidity or stiffness of the muscles. Akinesia refers specifically to lack of movement, such as loss of arm swing, but is also used to mean slowing (bradykinesia) or reduction (hypokinesia) in the size of movements. Akinesia affects mainly the hands or the trunk and walking. Gait disturbance usually does not present a major problem in the early stages of Parkinson's once treated, but as the years go by the person with Parkinson's, even with treatment, may begin to walk with short shuffling steps, described as a festinating gait. Sometimes people will say that their feet tend to get stuck or frozen to the ground so that they have trouble taking the first step when starting to walk; or when walking, they will suddenly come to an involuntary halt. They have similar problems when trying to turn around. Another problem related to the slowness of movement is turning over and getting in and out of bed. Balance can become affected and fear of falling may severely restrict activity, but again this is usually after Parkinson's has been present for many years.

Postural Instability
This may be experienced as poor balance or not being steady on standing, particularly when moving from lying to standing or sitting or when moving from sitting to standing. Other difficulties sometimes experienced.
(Information sheet - Falls and Parkinson's)

Speech changes include a faster or slower rate, a decrease in clarity and articulation of sounds and words or a change to the fluency so that it sounds like a stutter.
(Information sheet - Communication and Parkinson's)

Voice changes include a decreased volume, a change to the quality of the voice so that it may sound husky or a change to the pitch of the voice so it sounds monotonous.
(Information sheet - Communication and Parkinson's)

Swallowing changes include difficulty in chewing, increased time in mastication, food sticking in the throat, and coughing or choking on foods or fluids. If severe enough, swallowing changes can result in chest infections.

These changes can affect overall communication skills and, consequently, interactions and relationships with other people.
(Information sheet - Swallowing and Parkinson's)

Memory and concentration
A common question asked by people with Parkinson's and relatives is that of dementia. Certainly, recent studies have shown that there is some deterioration in intellectual function with Parkinson's. However, people with Parkinson's should be reassured that if this develops it is usually a late manifestation of the condition and in some cases can be improved with medication.

If problems do develop with memory, concentration and dementia in the early stages of Parkinson's, then one has to be suspicious regarding the correct diagnosis. An increasingly recognised condition called Dementia with Lewy bodies is closely related to Parkinson's , and causes problems with cognitive functions, such as memory and confusion, at the same time as or even preceding the motor (movement) symptoms.

Depression is very common in people with Parkinson's. It is related to many factors, and not simply to difficulties with movement. It is very important that depression is treated in its own right as it usually does not respond to treatment aimed at reversing the motor problems of Parkinson's.
(Information sheet - Relationships and Parkinson's)

About 40% of people living with Parkinson's experience anxiety with or without panic attacks. If you are living with Parkinson's you may experience dizziness, shortness of breath and sweating as part of a panic attack. Some medications may assist along with counselling and relaxation techniques.


Sleep Disturbances
Poor sleep is commonly associated with Parkinson's. Medications are available to assist with this, so a discussion with your doctor will be worthwhile.
(Information sheet - Sleep and Parkinson's)

Bowel and bladder
Constipation can be a problem particularly in the latter stages of the condition. As well there may be disturbance of bladder function. This is often the case at night. There may be other causes for disturbed bladder function, particularly in elderly men, e.g. prostate problems. This requires investigation and it should not be just attributed to Parkinson's unless all other causes for bladder instability have been excluded.

(Information sheet - Constipation and Parkinson's)

(Information sheet - Bladder Control and Parkinson's)

Restless legs
People with Parkinson's can develop restless leg syndrome, in which the legs feel a discomfort that is relieved by moving them, particularly at night. Sitting still for any length of time, particularly in the evening, can be very difficult. A sense of restlessness often makes a person want to get up and walk about to try to relieve the discomfort. This symptom can sometimes be helped by appropriate medication.

Tiredness or lethargy is a common symptom of Parkinson's. However, it is still important to maintain walking and an exercise program.

(Information sheet - Fatigue and Parkinson's) 

Please note: No two people will experience Parkinson's in the same way. Whilst the main and most common symptoms associated with Parkinson's are outlined here, there may be other symptoms that are experienced and there may be medical or other treatment available for these. 

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