Dystonia

This webpage has been produced on behalf of the Dystonia Support Group to provide information to people living with Dystonia. We hope that this information will help you to better understand your journey with this condition and offer ways to help with the day to day challenges you experience along the way. 

What is Dystonia?

Dystonia is a movement disorder characterised by sustained or intermittent muscle contractions causing abnormal, often repetitive, movements, postures, or both. Dystonic movements are typically patterned and twisting, and may be tremulous. Dystonia is often initiated or worsened by voluntary action and associated with overflow muscle activation.


Source: Movement Disorder Society 6 May 2013

What’s New


Local Events in South Australia

People with Dystonia are welcome to attend social lunches in Adelaide, which include occasional guest speakers.

Contact: Jacqueline Jeremy

Email: sadystonia@gmail.com

 

Resources & Information

Resources

Parkinson’s SA provides support and counselling for people diagnosed with Dystonia. The library contains some great information and resources on Dystonia.

Other Useful Links

  • Dystonia Network of Australia http://www.dystonia.org.au
    Providing a pathway to support, information, literature and community awareness for adults and children living with dystonia and their carers and health providers.

  • Australian Dystonia Support Group : https://australiandystoniasupportgroup.wordpress.com This group is also a closed support group on Facebook with email-only participants also welcome. A place where we come together to support each other, while sharing the good, the bad and the ugly. This Facebook group is open to Australians only, who have Dystonia in all its forms and all its stages. Contact: ADSG@live.com.au

  • Connecting Dystonia Australia (open Facebook page). Web address: https://www.facebook.com/ConnectingDystoniaAustralia

  • Brain Foundation – This Australian site includes information about different forms of dystonia, links to support groups and research.

  • Dystonia Medical Research Foundation – This American site provides comprehensive and up to date information about dystonia and links to support groups.

  • The International Parkinson and Movement Disorder Society (MDS) - This American society consists of professional clinicians, scientists, and other healthcare professionals, who are interested in Parkinson's disease, related neurodegenerative and neurodevelopmental disorders, hyperkinetic movement disorders, and abnormalities in muscle tone and motor control.

Treatment in South Australia

The Dystonia Support Group can provide a list of practitioners in South Australia who specialise in or have a particular interest in Dystonia. This list is of practitioners who are known to our Support Group and is not a full list of all practitioners available.

Muscular Dystrophy South Australia also supports people with neuromuscular conditions. 36-38 Henley Beach Road Mile End SA 5031 Phone: 08 8234 5266 Website: http://mdasa.org.au